Support for caregivers
Caring for someone with Fetal Alcohol Spectrum Disorder (FASD) can be rewarding, and it’s important that you feel supported, too. On this page, you’ll find trusted resources, peer networks, practical guidance and lived experiences to help you navigate life as a caregiver. Whether you’re a parent, relative or support worker, we’ve included links to useful organisations, tools and advice to help you feel more confident and connected.
National Organisation for FASD – Offers information on rights, education, benefits, and legal issues.
FASD UK Alliance – A list of nationwide support groups and training for families, carers and birth mothers.
Family Voice Surrey FASD Group - A peer support group for people living in Surrey
NOFASD Australia – Offers fact sheets, advice cards, training, and support resources for carers.
FASD Network UK – Provides training, information, and free downloadable resources.
The Potato Group – Peer-led support group for adoptive parents. Requires membership.
Strategies Not Solutions – A handbook offering practical support strategies.
I am a Caregiver Resource Guide – Covers sleep, sensory needs, routines, and more.
FASD Parent and Carer Experiences E-book – Offers real-life stories and practical help through diagnosis and support systems.
Prevention First – Resources for supporting siblings and responding to common questions.
Invisible Disabilities: A Day in the Life – Video from the Asante Centre showing the reality of living with invisible disabilities like FASD.
How Do I Help? – NHS animation series for families of neurodiverse children and young people.
SIGN Parents, Carers and Families Booklet – Explains Scottish clinical guidance for FASD.
Aggression Towards Family/Caregivers – Canadian resources for those experiencing AFCCA.
Tiny Titan – by Ann Yurcek – A story of overcoming adversity as a parent of children affected by in-utero alcohol exposure.
Our FAScinating Journey – by Jodee Kulp – An introduction to neurodevelopment written for families, covering behaviour, education, self-care and more.
Foetal Alcohol Spectrum Disorder: Parenting a child with an invisible disability – by Julia Brown and Dr. Mary Mather – Practical, real-life strategies and medical insight.
New Beginning: Better Than This – by Liz Kulp – An adult with FASD shares their story and lived experience.
Understanding Fetal Alcohol Spectrum Disorder – by Maria Catterick and Liam Curran – A practical and easy-to-read book with tools and strategies for success.